Sunday, December 30, 2012

Bucky Update: 12/30/12

Hello family,
I saw Bucky this afternoon.  He was doing well considering all he's been through.
I didn't write down his blood counts, so I hope I get this right...His neutrophil count is down to zero and his white blood cell count is .1

So he has absolutely no immune system.  So it is imperative that visitors wash their hands before entering his room.  We love you, but please don't come if you have a cold, the flu, or any other infection.  If you think you are getting sick, just don't come.  I know I sound rude, but I would really like my husband to be able to get out of the hospital as soon as possible.
After transplant, it takes 14-21 days for the cells to begin to grow and function.  (Bucky is on day 2.)  One of the risks of transplant is graft-versus-host disease (GVHD).  To prevent GVHD, they give Bucky an immunosuppressant, tacrolimus. 
In order for Bucky to get out of the hospital he has to have no sign of infection, no fever, no signs of uncontrolled GVHD, and he has to be eating and drinking enough.
Recovery for his transplant can take up to a year (or more).  His taste buds should return to normal in about 4 months, but his energy level could remain low for a long time.
We are hoping that the healthy stem cells will recognize the residual leukemia and destroy it and that his next bone marrow biopsy will show no leukemia.  "The Lord is able to do all things according to His will, for the children of men, if it so be that they exercise faith in him.  Wherefore, let us be faithful to him." (1 Nephi 7:12)
Thank you for your prayers.  We can feel them and are so grateful for them.
Love you all,
TJ

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